Community Nursing Team - list of links

Sources of information on Early support /support for families with Disabled children

National

National Children’s Bureau.
www.ncb.org.uk
Information on Early Support. Early Support information for Parent’s  booklets  e.g on Down Syndrome, Cerebral Palsy.

Contact a family
www.cafamily.org.uk
Tel advice line M-F 9-5, 0808 808 3555
E-mail helpline@cafamily.org.uk
Provides information on a wide range of conditions and benefits. The website also gives details of the local support they provide across the country.

Scope
www.scope.org.uk
Tel advice line M-F 9-5 0808 800 3333
E-mailresponse@scope.org.uk
Information and advice around cerebral palsy. The website also gives details of local support they provide across the country.

Family fund
www.familyfund.org.uk
Provide grants to low income families raising disabled children and seriously ill children. Can be essential items e.g washing machine, but also consider  holidays or driving lessons.

Fledglings
www.fledglings.org.uk
A charity that sources products to help solve the practical problems that families have e.g complete socket covers ,for a family whose child continually switched  electrical lights and appliances on and off. Specialist clothing and equipment.

Local

Pinpoint
www.pinpoint-cambs.org.uk
Their website provides useful information for parents , and also a forum for parents to get in touch with each other.
They also run parent network meetings where parents have the opportunity to give their views on specific topics related to disabled children. Pinpoint then feeds that information back to the county council, and health services

Papworth Trust
www.papworth.org.uk
Free information and advice re benefits for families across Cambridgeshire.
Tel: 0800 952 5000 M-F 10-5
e-mail info@papworth.org.uk

Cambridgeshire County Council
www.cambridgeshire.gov.uk
Information on statutory services e.g :

Disabled Children's Early Help Team:
Any child receiving the higher rate DLA is automatically entitled to a personalised budget of £2000 a year. Families apply by contacting the call centre 0345 045 5203 and then completing a short application form.

Families on the middle rate DLA can apply for short breaks by contacting the call centre, to request a social care assessment.

Further information on short breaks can be found on the county council website or e-mail Disabled.Children'sEarlyHelpTeam@Cambridgeshire.gov.uk or Tel 01480 379800.
  

Parent  Partnership Service.
www.cambridgeshire.gov.uk/pps
Provide clear, impartial advice and information about SEN, learning difficulties, disabilities and medical needs.

Young Carers
For children and young people 8-18 years who have a sibling or parent with a disability.

Huntingdon (Crossroads)  0845 241 2125

Fenland (Crossroads) 07432 128630
www.crossroadscarecambridgeshire.org.uk

Cambridge (Centre 33) 01223 307 488.
www.centre33.org.uk

Feb 2013